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hret disparities toolkit
a toolkit for collecting race, ethnicity, and primary language information from patients
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How to Ask the Questions

As we suggested in the Collecting the Data section of the Toolkit, we recommend that health care organizations/health plans provide a rationale for why they are asking patients/enrollees for information about their racial and ethnic background. Suggested wording for the rationale is:

"We want to make sure that all our patients get the best care possible. We would like you to tell us your racial/ethnic background so that we can review the treatment that all patients receive and make sure that everyone gets the highest quality of care."

We have found that people feel comfortable responding to the question about race/ethnicity, but they sometimes have their own questions or want more clarity. And some people may prefer to not answer the question at all.

The following link to a response matrix (PPT) provides real world examples of questions people have asked as well as suggested responses. This response matrix is not all inclusive. You may encounter different scenarios, and you may not hear any concerns from patients after asking these questions. The response matrix serves as a tool for you and your staff, and it is excellent for facilitating dialogue during training sessions.

Race/Ethnicity

Using Broad (OMB) Categories

"We want to make sure that all our patients get the best care possible. We would like you to tell us your racial/ethnic background so that we can review the treatment that all patients receive and make sure that everyone gets the highest quality of care."

Ethnicity Question

(OMB recommends asking ethnicity before race.)

Do you consider yourself Hispanic/Latino?

  • Yes
  • No
  • Declined
  • Unavailable/Unknown

Race Question

Which category best describes your race?

  • American Indian/Alaska Native
  • Asian
  • Black or African American
  • Native Hawaiian/Other Pacific Islander
  • White
  • Multiracial
  • Declined
  • Unavailable/Unknown

Using Granular Categories

"We want to make sure that all our patients get the best care possible. We would like you to tell us your racial/ethnic background so that we can review the treatment that all patients receive and make sure that everyone gets the highest quality of care. I would like you to describe your race or ethnic background. You can use specific terms such as Korean, Mexican, Haitian, Somali, etc…"

You can provide all or some of the granular categories based on the community you serve.

Granular Code Set II (PPT)

Language

  1. What language do you feel most comfortable speaking with your doctor or nurse?

    African languages
    American Sign
    Language
    Arabic
    Armenian
    Chinese
    English
    French
    French Creole German
    Greek
    Gujarathi
    Hebrew
    Hindi
    Hungarian
    Italian
    Japanese
    Korean
    Laotian
    Miao Hmong
    Mon-Khmer Cambodian
    Navajo
    Other Native North
    American languages
    Persian
    Polish
    Portuguese
    Portuguese Creole
    Russian
    Scandinavian
    languages
    Serbo-Croatian
    Spanish
    Tagalog
    Thai
    Urdu
    Vietnamese
    Yiddish
    Availability of Sign Language or other auxiliary aids or services
    Other
    Do not know
    Unavailable
    Declined



  2. How would you rate your ability to speak and understand English?
    • Excellent
    • Good
    • Fair
    • Poor
    • Not at all
    • Declined
    • Unavailable


  3. Would you like an interpreter?
    • Yes
    • No
    • Do not know
    • Declined
    • Unavailable


  4. In which language would you feel most comfortable reading medical or health care instructions?

    African languages
    American Sign
    Language
    Arabic
    Armenian
    Chinese
    English
    French
    French Creole
    German
    Greek
    Gujarathi
    Hebrew
    Hindi
    Hungarian
    Italian
    Japanese
    Korean
    Laotian
    Miao Hmong
    Mon-Khmer Cambodian
    Navajo
    Other Native North
    American languages
    Persian
    Polish
    Portuguese
    Portuguese Creole
    Russian
    Scandinavian
    languages
    Serbo-Croatian
    Spanish
    Tagalog
    Thai
    Urdu
    Vietnamese
    Yiddish
    Availability of Sign Language or other auxiliary aids or services
    Other
    Do not know
    Unavailable
    Declined



  5. How satisfied are you with your ability to read English?
    • Very satisfied
    • Somewhat satisfied
    • Satisfied
    • Somewhat dissatisfied
    • Very dissatisfied
    • Declined
    • Unavailable

 

 

 

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